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The Autism Poetry page is a place where we can all express our individual feelings of what we experience. 

If you have a poem you would like to submit please send it to janet@newautism.net.

Remember, there are others who know what you are going through, we understand...............



Walk In My Shoes
 

Walk in my shoes

          for an hour, a day, a week.

          what will you see?

          the pain of my child.......

          the pain of my heart......

 

Don't hide in corners

          then judge

Don't give opinions

          then run

You should do this, try that,

          don't yell, be calm,

          ignore, go to bat.

 

Change medication, school, home??

Feel lost and alone and continue

          to roam?

Change what's inside?

Change the system?

Change the ignorance?

Fight for my child and

          my sanity?

Would the frustration

          tear you apart at the seams?

Would you lose control

What's the answer

          what's the key

          to be determined by me....

Walk in my shoes,

          you'll see, you'll see.....

 

Not even family knows

          the complexity, the issues

          the true scope of what I face

The walls of my home know more,

          feel more, hear more, listen more.

They breathe in and out with me every day,

          they are there through the stress, anger,

          and yes, even the peaceful moments.

They are strong, dependable and sturdy,

          they listen and don't judge, they absorb my anger

          and give me stability.

Don't enter inside my walls

          without a clear and open mind,

          see the truth, can you be

          as dependable as my walls?

Walk in my shoes,

          you'll see, you'll see.

 

What can I do,

          what choice do I have

          watch my boy grow

          into a man

See what will be

What will happen when

          he doesn't have me....

          to fight his battles

          and go to war

          to tell everyone

          he needs more

          only to have it fall to

          deaf ears

Where will he be

          what will become without me......

 

They say they will

          look into this, into that

          see what can be done

          what's out there to help

          words are just words.......

          to appease the parent

          to keep him silent

          to calm him and get him out the door

          all the while

          he cries out

          my child needs more!!!

If it waits too long

          where will he be?

          where will I be?

Walk in my shoes

          for an hour, day or week,

          you will see, you will see.

         

My eyes are tired

          my energy is

          growing weak

It's a daily struggle

          can it be beat?

When will they listen

          when will they care

When it's too late

          and we're no longer here?

Do you get it

          do you hear what I am saying

          do you feel what I feel

          or do you think you do

Would you react the way I do

          if you walked in my shoes.......

 

If people are there to criticize

          or "give" me advice

          or their opinion

          then be there

          to REALLY give help

          don't just say you will

You think it's so easy

          you think I handle it wrong

Anyone can walk in my house for

          an hour, 3 times a week

          but live it, breathe it, want to escape it,

          or improve it, or survive it, how would you?

Walk in my shoes, a second, a moment,

          a lifetime........

          then you'll see, you'll see.......

 

Author: Janet Sims

Dedicated to my husband, Richard and step-son, Joshua

 

 

        



Imagine
 

Imagine..

No I love you’s…

No family picnics, parades, or weddings..

No friends or playmates..

No common sense..

 

Imagine..

A 4 yr. Old that doesn’t understand what

Will happen if he runs in front of a car

Or jumps into a pool..

Imagine a home looking like Ft Knox

Just to keep your child safe

 

Imagine..

Being told your child has a neurological brain disorder

And maybe never be able to speak, function in society,

Live alone, marry or have children, your heart sinks..

 

Imagine..

After waking your child in the morning, if you don’t do

Everything in the same order as the day before, at the

Precise moment it’s enough to ruin their entire day..

 

Imagine..

Watching your child on the first day of school stepping

Into the handicapped bus..

 

Imagine..

Having your home invaded with teachers, therapists,

State reps, child psychologists for 35 hrs per week of intense

1 on 1 therapy in hopes of a better life someday..

 

Imagine..

Watching the agony on your child’s face giving you the

“Mommy why are you letting them do this to me” look

while doing numerous EEG’s, blood work, x-rays, and testing to

figure out how to help them feel better..

 

Imagine..

Just how many “your kids a brat” stares you get in public

Simply because your child cannot handle social situations

Including a simple trip to the grocery store..

 

Imagine..

What autistic children, parents and families go through

On a daily basis..

 

Author: Nicole Lannyk, Mother of 4 year old James

Published on Autism Society of America website

 

 



Now Be On Your Way
 
Now be on your way....
February 14th 2003 is a day that is forever etched in my mind. The doctors sat across the table from us and explained to us that our son has a neurological brain disorder. They have no cure, no real suggestions, they don't know if he will ever speak or be able to live alone and function in society. Thats it.... Here's your diagnosis now be on your way and try to live your lives the best way you know how.
Be on your way....And try to figure out how to communicate with this child that does not speak.
Be on your way.....And try to find a school that will make a difference and embrace and engage your child and teach them in a way they can understand.
Be on your way....And try to find funding for therapy since insurance companies wont cover anything.
Be on your way....And try to learn what IEP's are, What ABA is, What GF/CF means and how to do it properly.
Be on your way...And learn how to deal with the meltdowns and the rage when something triggers them even if you don't always know what those triggers are....
Be on your way.....And learn how to begin the process on grieving because in a way it is a loss.
Be on your way.....And begin the most important part after the grieving process, the healing part, the part where you accept that this is your life now, this is the child you love to no end, this is the child you would move heaven and earth for and that is what you do. You do everything in your power you make a difference in that child's life. You be their voice, You advocate for them because they cannot, and realize that if you don't nobody else will. You be the best, most patient understanding parent you know how to be. Most importantly you need to realize That god gives special kids to special people and that its your job to love them unconditionally and keep them safe.
Now be on your way....
Author: Nicole Lannyk




 

"Mom," the sweet voice echoed.
Ah! My little parrot boy,
For five years I've waited for you to say my name.
Tonight you heard your brother complain
And this past hour I smile as you repeat
"Mom, I did take a shower.
Mom, I did take a shower.
Mom."

Juniper Sundance




 
 
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